Originally appeared in Weston Magazine Group
Joseph D’Adamo essentially came into
this world as a very typical child. But at three year’s old, the simplistic
state of normalcy that we all take for granted, changed for Joseph, and his life
would never be the same.
“Joseph started to have Petit Mal
Seizures where there would be staring spells. He would just zone out,” says his
mom, Lori D’Adamo from their Mt. Kisco home, where I sat down and met the
family.
The seizures got so bad that he
would sometimes go into a deep sleep, but the more troubling aspect was the
sheer number of unnoticeable seizures. “We didn’t know how many he was having
everyday,” says Lori
The impact it had on his ability to
learn and process was obvious. On the other hand, the anti-seizure medication
designated by the doctors at Columbia Presbyterian did stabilize Joseph, but the
relocation of his pediatric neurologist a few years later sent everything into
flux.
His medications were continually
changed, and Joseph’s condition suffered the same sort of uncertainty. “We weren’t
satisfied,” said Lori, and through the recommendation of a friend, the D’Adamo’s
connected to the epilepsy center at NYU.
Examination found that the condition
emanated from the left side of the brain and made Joseph a good candidate for
surgery. So instead of adhering to a rollercoaster ride of Rx’s, there was a
good chance that brain surgery would end the seizures and possibly put Joseph
back on the road to normal development.
The surgery a success, the best case
scenario did not play out. “Unfortunately, the damage had already been done, but
the fact that he no longer has seizures or needs medication is definitely
something,” says Lori.
12 years later, Mom describes Joseph
as mentally disabled and globally challenged. He looks like a 20 year old adult
but reads and writes at Kindergarten level, while having a normal understanding
of all that’s going on around him.
Nonetheless, the start of my
conversation with Joseph didn’t necessarily elaborate on the
clinical description or shed light on the young man’s true nature – save the
endearing dialogue emanating from the proud mom. At the same time, as Joseph
fidgeted and returned a number of brief replies, his Dad had a good handle on
the situation.
“This is a challenge for him,” Gary
D’Adamo piped in. But just because my sit down format failed to put the young
man at ease, doesn’t mean the Fox Lane High School Student is ever a challenge.
And when that proper venue was found, it was easy to understand where this
family’s loving bias derives from.
“He loves to drive,” said his
Mom.
Referring to the golf cart Joseph
scoots around the neighborhood, we descended to the garage to take a look. Now
illuminated, he proudly showed me the headlights he flips on in case dusk
interferes with the neighborly role that the cart allows him to play. “He always
wants to help people,” said Lori.
So if someone is cleaning out their
garage, moving furniture or straightening out the yard, Joseph puts on the
breaks and lends a hand. Now as well he should, Joseph is certainly amenable to
being more than just a nonprofit organization. “When you help people, sometimes
they give you money,” he said resourcefully.
Otherwise, he may simply boost his
neighbors’ empty garbage pails back to their garages, and if they miss him in
reverse, his license plates are hard to overlook. “Broadway,” he directed me to
the letters that ID his biggest passion.
Thanks to his parents, the
Great White
Way is a frequent destination – “Motown” their latest
escape. “I liked the clap of the audience,” he extolled the experience with
joy.
Broadway flights of fancy aren’t out
of his cultural comfort area either. “We were in the fly zone,” he says of the
spectacle known as Spiderman.
The immersion has thus left a
distinct impression and a path to the future. “I want to live in New York City ,” he
says.
Unfortunately, this is a bittersweet
proposition for his mother. Certainly proud of the independence he’s learning
in Fox
Lane ’s Life Skills Program, Lori worries about her
son someday leaving home. “That’s what I’m struggling with right now,” she
says.
Slated to graduate from Fox Lane in June,
Joseph will attend Pace University and enroll in a job training
program that furthers the life skills he’ll need to get by. But for the moment,
he won’t go too far. “Right now, we’re choosing that he lives with us,” she
says.
Of course, Joe will someday leave
the nest and likely go with the current flow in assisted living. “They are
getting away from group homes. They often have an apartment with three bedrooms
and a kitchen. Then we would have support staff come in to make sure the boys
are ok,” she says.
Such an essential option exists for
Joseph in part because of the permissible atmosphere found in the Bedford schools. “I hear a
lot of bad things about different districts, but the Fox Lane community
is so welcoming to all these kids,” she says.
As such, Joseph has learned to cook,
is getting lessons on how to grocery shop and ride public transportation, while
his job coaching has enabled him to volunteer at Northern Westchester Hospital .
On the social side, the North East Westchester Special Recreation Program provides numerous field trips,
sports opportunities and the chance to kick it up like his role models on
42nd street . “Da di da, di da di
da,” were enough to describe his strut at the student dances he loves to
attend.
Less economical with her words, Mom
keenly comprehends how the program gives special needs children the chance to
interact like other kids. Often excluded from the typical play dates and such,
she says, North East allows these children to have friends and get out there in
their own environment.
All rounded out, the happiness that
comes with it means the world to his parents. “All I want for Joseph is to be
the best he can be, and for me and Gary, we’re just so proud of how much he has
accomplished,” she says.
But returning to the driveway, we
left the golf cart for my wheels, and Joseph didn’t hesitate to affectionately
editorialize on the state of my messy car. “It’s a disaster,” he said on a roll now.
Mom attempting to soften the jab,
where it was in no way necessary, said he’s meticulous and keeps his room very
organized. The approach extends to how he presents himself – especially when a
hit play or fancy restaurant is on the agenda. “I have to put on my good going
out clothes,” Mom relayed his typical refrain.
Regardless, her sometimes messy
closet didn’t escape Joseph’s sense of humor, as he playfully occupied my
driver’s seat and honked the horn. “She has too many clothes,” he
joked.
Given the trip the family intends to
take in the near future, Mom might have to make some room for him in her
closet. “Where are we going to go on our trip to England ,” she
prompted her son.
“To the West End,” he said on cue of
the famed London
theatre district.
Top hat and tails, Joseph eventually
relinquished my ride and ushered me off feeling that his favorite Louis
Armstrong song is a fitting way to describe his disposition and the impact it
has on everyone around him.
“What a Wonderful Life.”
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